AAADV Fundamentals

In Collaboration with Susan G. Komen
New for 2016! Pre-workshop for Patient Advocates



Planning Committee



Pre-course Reading

AAADV Fundamentals

In collaboration with Susan G. Komen

AAADV Fundamentals introduces patient advocates to the U.S. Food and Drug Administration’s drug development and approval process.

This custom course held in advance of the annual AAADV Workshop focuses on how advocates can work more effectively with all stakeholders in the research process – industry, academia, government and technology – to ensure the patient voice is incorporated across all conversations and decision making.

This knowledge and perspective will help patient advocates benefit more fully from the complex discussions that take place at the Workshop. Fundamentals participants must attend the AAADV Workshop on May 4-6.

Qualified patient advocates receive scholarships to attend the Fundamentals course and AAADV Workshop that follows, made possible through grants from our sponsors.

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H. Kim Lyerly, M.D.
Duke University
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Sandra Finestone, Psy.D.
Susan G. Komen
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Elizabeth Garrett-Mayer, Ph.D.
Medical University of South Carolina
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Leigh Marcus, M.D.
U.S. Food and Drug Administration
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Louise M. Perkins, Ph.D.
Melanoma Research Alliance
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Patricia Spears, B.S.
Susan G. Komen

Advocates: $2,000

All attendees must submit a letter from their advocacy group or foundation verifying their affiliation with the organization. Fundamentals participants must attend the AAADV Workshop on May 4-6. The above fee amount includes registration to the pre-workshop course and the workshop.

Cancellation policy:

  • Full registration fee refund if cancelled by March 31, 2016
  • 50% of registration fee refunded if cancelled between April 1 and 15, 2016
  • No refunds if cancelled after April 16, 2016

Scholarships are available to qualified patient advocates.

The scholarships will cover the cost of registration as well as provide up to $750 in travel expenses plus accommodations at the Bethesda North Marriott Hotel, checking in on Monday, May 2, and departing Friday, May 6. Details and guidelines are provided upon notification of award.

Scholarship Applicants Must:
  • Submit a letter from your advocacy group or foundation verifying your affiliation with the organization.
  • Provide a statement describing the reason(s) you wish to attend the AAADV Fundamentals course and Workshop and how you plan to use the information gained. Include in the statement your plan to disseminate information to others inside and outside of your organization and how participation in this program will change or improve your advocacy for research or change how you interact with your constituents and/or with researchers.
  • Upload a copy of your curriculum vitae.

Scholarship recipients will be notified by email within 10 working days of application.

Scholarships are made possible by grants from our sponsors.

A limited number of scholarships are available so early application is encouraged.

To better understand the material and topics to be covered in the AAADV Fundamentals pre-workshop training course, attendees are strongly encouraged to read the articles noted on the attachment and/or undertake one or more of the online training courses that are listed.

Upon completion of the course, attendees will be asked to submit a brief (200 word) summary of the benefit gained from the course and/or areas for improvement.

NOTE: Scholarship recipients will be required to submit this information in order to receive the balance of their travel scholarship.